|NBS and Genetics Advisory Committee (NBSAC)|
In March of 1999, a select review team sponsored by the Health Resources and Services Administration (HRSA), the Maternal and Child Health Bureau’s Genetic Services Branch, reviewed the NBS Program at the invitation of the Georgia Department of Public Health. This review team recommended that Georgia develop an advisory council with oversight and advisory responsibility for the entire program.
The purpose of the Advisory Committee is to advise the Georgia Department of Public Health on a statewide system for newborn screening and genetics.
Advisory Committee Members as of December 2015
James Eckman MD - Chair, Emory University School of Medicine
Patricia Hall PhD – Co-Chair, Emory University School of Medicine
Tarek Bisat MD, Navicent Health
George Bugg MD, Emory Healthcare and Grady Memorial Hospital
David Carlton MD, Emory Healthcare
Jill Levy-Fisch, President, Save Babies through Screening Foundation
Jeffrey Fouche-Camargo DNP, AWHONN
Kevin Gomez MD, Atlanta Perinatal Consultants
Peter Lane MD, Emory University and Children’s Healthcare of Atlanta
Hong Li MD, Emory University School of Medicine
Stephanie Moss COO, Parent to Parent of Georgia
Terri Patterson, Executive Director, Hands and Voices
Rani Singh PhD, Emory University School of Medicine
Aerica Summers MD, Atlanta Medical Center
N. Wendell Todd MD, Emory Healthcare and Children’s Healthcare of Atlanta
Kristen Vanags, President, Georgia PKU Connect
Karen Waters, SVP, Georgia Hospital Association
Julie Zaharatos, March of Dimes
Public meetings are held bi-annually in the third week of January and July. The January meeting is held at the Georgia Public Health Laboratory, 1749 Clairmont Road, Decatur in GA 30033, from 1:00 – 3:00 PM. The July meeting location is TBA.
Requests to Nominate a New Condition
Anyone can nominate a condition for review, however, the Committee encourages individuals and organizations to form multi-disciplinary teams to submit nominations for conditions to be considered for inclusion. Teams should include researchers and/or clinicians with expertise on the condition being nominated, advocacy and/or professional organizations with knowledge of issues relevant to newborn screening, and interested consumers/individuals.
To nominate a condition, submit a nomination package that includes:
- A cover letter by the lead nominator and their organizational affiliation(s), if applicable;
- Contact information for the nominator;
- Signed Conflict of Interest Disclosure Forms from all team members, if applicable;
- Complete responses to the Georgia Newborn Screening Panel Nomination Form;
- Letters of support; if applicable
- Scan and email a completed copy of the nomination package to David.Bayne@dph.ga.gov
Consideration by the Georgia NBSAC will be evaluated by an ad hoc condition working group for inclusion or exclusion of a condition to the newborn screening panel. The workgroup will report back to the Georgia NBSAC for discussion of a recommendation to the Georgia Department of Public Health for inclusion or exclusion in the Georgia newborn screening panel.
Page last updated 5/9/2016