NBS Advisory Committee

Newborn Screening
Parents/Caregivers
Providers
Hearing Screening
NBS and Genetics Advisory Committee (NBSAC)
Resources

In March of 1999, a select review team sponsored by the Health Resources and Services Administration (HRSA), the Maternal and Child Health Bureau’s Genetic Services Branch, reviewed the NBS Program at the invitation of the Georgia Department of Public Health. This review team recommended that Georgia develop an advisory council with oversight and advisory responsibility for the entire program.

Purpose/Role

The purpose of the Advisory Committee is to advise the Georgia Department of Public Health on a statewide system for newborn screening and genetics.

Advisory Committee Members as of December 2015

James Eckman MD - Chair, Emory University School of Medicine

Patricia Hall PhD – Co-Chair, Emory University School of Medicine

Tarek Bisat MD, Navicent Health

George Bugg MD, Emory Healthcare and Grady Memorial Hospital

David Carlton MD, Emory Healthcare

Jill Levy-Fisch, President, Save Babies through Screening Foundation

Jeffrey Fouche-Camargo DNP, AWHONN

Kevin Gomez MD, Atlanta Perinatal Consultants

Peter Lane MD, Emory University and Children’s Healthcare of Atlanta

Hong Li MD, Emory University School of Medicine

Stephanie Moss COO, Parent to Parent of Georgia

Terri Patterson, Executive Director, Hands and Voices

Rani Singh PhD, Emory University School of Medicine

Aerica Summers MD, Atlanta Medical Center

N. Wendell Todd MD, Emory Healthcare and Children’s Healthcare of Atlanta

Kristen Vanags, President, Georgia PKU Connect

Karen Waters, SVP, Georgia Hospital Association

Julie Zaharatos, March of Dimes

Meeting Schedule

Public meetings are held bi-annually in the third week of January and July. The January meeting is held at the Georgia Public Health Laboratory, 1749 Clairmont Road, Decatur in GA 30033, from 1:00 – 3:00 PM. The July meeting location is TBA.

Requests to Nominate a New Condition

Anyone can nominate a condition for review, however, the Committee encourages individuals and organizations to form multi-disciplinary teams to submit nominations for conditions to be considered for inclusion. Teams should include researchers and/or clinicians with expertise on the condition being nominated, advocacy and/or professional organizations with knowledge of issues relevant to newborn screening, and interested consumers/individuals.

To nominate a condition, submit a nomination package that includes:

Consideration by the Georgia NBSAC will be evaluated by an ad hoc condition working group for inclusion or exclusion of a condition to the newborn screening panel. The workgroup will report back to the Georgia NBSAC for discussion of a recommendation to the Georgia Department of Public Health for inclusion or exclusion in the Georgia newborn screening panel.

 

 

 


Page last updated 5/9/2016