NBS Advisory Committee

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In March of 1999, a select review team sponsored by the Health Resources and Services Administration (HRSA), the Maternal and Child Health Bureau’s Genetic Services Branch, reviewed the NBS Program at the invitation of the Georgia Department of Public Health. This review team recommended that Georgia develop an advisory council with oversight and advisory responsibility for the entire program.

Purpose/Role

The purpose of the Georgia Newborn Screening and Genetics Advisory Committee (NBSAC) is to advise the Georgia Department of Public Health on a statewide system for newborn screening and genetics.

Advisory Committee Members as of November 2019

James Eckman (Co-Chair)

Emory University School of Medicine

Patricia Hall (Co-Chair)

EGL

George Bugg

Emory Healthcare and Grady Memorial Hospital

David Carlton

Emory Healthcare

Lynne Hall

Georgia Hospital Association

Peter Lane

Emory University and Children’s Healthcare of Atlanta

Hong Li

Emory University School of Medicine

Deb McGhee-McCrary

Sickle Cell Foundation of Georgia, Inc.

Stephanie Moss

Parent to Parent of Georgia

Betty Pace

Augusta University

Terri Patterson

Georgia Hands & Voices

Rani Singh

Emory University School of Medicine

Kristen Vanags

Georgia PKU Connect

Meeting Schedule

Public meetings are held bi-annually, typically in the summer and winter. For more information regarding meeting time and location, contact the NBS Program at 404-657-4143.

Nominating a New Condition

Nominations to add new conditions to the Georgia NBS panel must be completed and submitted to the Georgia NBSAC for consideration. Anyone can nominate a condition for review, however, the Committee encourages individuals and organizations to form multi-disciplinary teams to submit nominations for conditions to be considered for inclusion. Teams should include researchers and/or clinicians with expertise on the condition being nominated, advocacy and/or professional organizations with knowledge of issues relevant to newborn screening, and interested consumers/individuals.

To nominate a condition, submit a nomination package that includes:

 

Nomination forms must be submitted at least six (6) weeks prior to the NBSAC meeting during which the nominator will present their nomination.

The Georgia NBSAC will consider the completed nomination package and presentation to determine whether to establish a workgroup to review the condition for addition to the Georgia NBS panel.

 

 

 

 


Page last updated 11/26/2019